Saturday, 28 February 2015

My experiences with shame and stigma.



     Many, if not all, of us have experienced some sort of stigma at a point in our lives.  Before getting into the stigma I have faced let me say that I know exactly how privileged I am.  All in all, I’ve had a pretty good life.  That being said I am going to talk about my experience with stigma as it pertains to mental health issues.

      What is stigma?  For those that don’t have a good idea about what stigma actually is, it is a negative stereotype.  It often trivializes those that it stereotypes, belittling them.  It also usually offends them, and patronizes them.  If it does any of those things, chances are it is an example of stigma.  I would say that stigma comes from assumptions.  When we make assumptions we run the risk of stigmatizing people.

     Growing up there was nothing specific I can remember being said against those with mental health issues.  There was certainly something in the air in general though.  The media is steeped with stereotypes against those that suffer with mental health issues.  Perhaps that is where I learned that there was something wrong with something being wrong.  At any rate, I learned two things: getting help is not something a man does, and medication is only for when there is something you can’t fix on your own.

     As my life progressed and I needed help I didn’t even know how to ask for it.  It was offered, but I couldn’t accept it.  When I was in the hospital for the first time my own assumptions about what those with mental health issues crept into the open and didn’t allow me to get the help I desperately needed.  I thought to myself “these people are crazy, I don’t belong here, I’m normal.”  After getting out of the hospital I was given tremendously bad advice by those who didn’t understand, didn’t want to understand, or had a skewed perspective on what was going on with me.

     I think they were honestly trying to help, but were of a generation that had less of a grasp on mental health than I did.  I think the biggest issue was everyone simply not talking about what was going on.  There was something wrong with me; others claimed it was just weakness.  There was shame, shame in disappointing others, shame in not being able to look others in the eye with confidence.  I remember feeling so broken.

     I didn’t know how to talk about what was going on with me.  This caused me to run.  I tried to run as far and as fast from everyone I knew, and when my issues flared up my first instinct was to run.  This caused many failed relationships.  Not just romantic, but friendships and familial relationships were ruined.  I was so afraid of being judged harshly and part of me felt it wasn’t their business.  I could handle my own affairs solely.  This always ultimately led to isolation.  If I was alone, I couldn’t be judged.  That seemed like the best course of action.

     It wasn’t until I entered the work force that I fully understood what type of discrimination I could face for having bipolar and being hospitalized.  I remember the shame I felt immediately after my latest (and hopefully last) suicide attempt.  There was nothing but shame in my eyes.  I feared that I would lose my job.  I learned shortly thereafter that another employee was demoted for being on antidepressants that were supposedly causing her to make mistakes.  I worked in retail, which in and of itself is not forgiving of any missed time, and every time I needed to call off I was so afraid I was going to lose my job that I desperately needed.

     I was ashamed and told white lies to coworkers so that they would not know what had happened regarding my hospitalization and my continued instability.  I was afraid that they would treat me differently.  I was afraid of the discrimination I would face.

     One particular instance I remember was talking with my therapist about doing work that I found fulfilling, and I had said that when I worked the customer service desk I felt more as though I were doing something that mattered because I made people happy.  My therapist had suggested that I get a note from my psychiatrist stating that I could only work the desk.  When I turned it in I was met with overwhelming opposition.  The request was seen as unreasonable in that it was more stressful and harder work therefore it made no sense that I should have such a request.

     I was so careful about what I said to anyone about why I was only behind the desk and of course made it a point to hide anything going on with me.  I couldn’t always hide, of course.

     Eventually a local relocation forced me to leave that particular store and part of me really wonders if the reason I had such a hard time finding work (I didn’t), while I was still in the state, had to do with receiving a negative review by my previous place of employment.  For some reason I was even denied a transfer to a local store that was within walking distance.

     It was not until recently that I have fully embraced what is going on and realizing that there is discrimination against those with mental health issues and that the only way for that to end is for people to stand up and publicly state what is going on with them.  That being said, I am trying very hard to correct people when they make a discriminatory statement and be more open about my own issues.

    So, how about you?  What are your experiences with stigma?  Have any stories or anecdotes about discrimination?  Share them in the comments below if you feel comfortable.  Let’s get a dialog going on this, shall we?

--JJM

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